Introduction:
The impact of chemotherapy-induced peripheral neuropathy (CIPN) on cancer survivor quality of life is increasingly understood, however there is no standardised assessment approach. Clinicians commonly underestimate the significance and severity. Patient-reported outcomes (PRO) are increasingly utilised, to enhance symptom management and well-being. This study aimed to evaluate CIPN PROs, the correlation with medical/nursing assessments and assess feasibility of a tablet-based system.
Methods:
Patients receiving platinum or taxane chemotherapy at RNSH were eligible. Patients completed a questionnaire containing standardised CIPN PRO assessments (EORTC CIPN-20, PNQ, NCI PRO-CTCAE) via tablet device. NCI CTCAE grading scale medical (median 7 days from PRO) and nursing (day of PRO) assessments from the medical record were correlated with PRO (Spearman’s correlation and linear regression). A subset completed follow-up questionnaires after further cumulative chemotherapy.
Results:
44 patients completed questionnaires, with 12 follow-ups (median further 59.5 days). 61.4% received platinum chemotherapy, 54.5% taxane and 15.9% combination platinum-taxane. 47.7% exceeded a cumulative dose associated with CIPN. 59% reported symptoms of tingling or numbness, with 32% reporting ‘quite a bit’ or ‘very much’ tingling/numbness in hands/feet. Correlation of medical assessment (n=29, 51.8%) with EORTC sensory scale (r2=0.357, p<0.01), PNQ1 sensory scale (r2=0.382, p<0.01) and NCI PRO-CTCAE severity (r2=0.374, p<0.01) and functional impact (r2=0.149, p=0.04) scales was poor. Nursing assessment (n=54, 96.4%) correlation with EORTC sensory scale (r2=0.241, p<0.01), PNQ1 (r2=0.385, p<0.01) and NCI PRO-CTCAE severity (r2=0.476, p<0.01) and functional impact (r2=0.177, p<0.01) scales were similarly poor. Ten follow-up patients had increase in PRO symptoms, however none had documented medical assessment change. Rating for ease of use (scale 1-10) of tablet questionnaire showed high feasibility (mean value 9.63, SD 0.82).
Conclusion:
Tablet questionnaire of CIPN PRO demonstrated excellent feasibility. Medical and nursing assessment correlation with PRO was poor. Further evaluation of CIPN PRO impact on clinical treatment decisions is warranted.